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National Congenital Anomaly and Rare Disease Registration Service: patient leaflet

What NCARDRS does, the benefits of registering, and how we look after your information.

• From: Public Health England
• Published: 1 July 2015
• Last updated: 14 February 2019 — See all updates

Documents

The National Congenital Anomaly and Rare Disease Registration Service: what it is, the benefits and your options

Ref: PHE publications gateway number 2014821

PDF, 325 KB, 2 pages

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Details

This leaflet is for GPs and clinicians to use when speaking to parents whose baby has a congenital anomaly or rare disease.

GPs and clinicians can contact the regional offices for printed copies of this leaflet.

Published 1 July 2015
Last updated 14 February 2019 + show all updates

1. 14 February 2019

   Added updated patient leaflet.

2. 25 May 2018

   Updated National Congenital Anomaly Rare Disease Registration Service leaflet.

3. 1 July 2015

   First published.